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Our Adventure

This journal contains entries related to 'our adventure' with brain cancer. The latest entries are at the top. 

To view the complete list of entries, click here. Click here to go the first entry.

Thank you for checking in with us and especially for all your prayers and support!

Chris & Sandy and Family

Thursday
Jun202013

My latest update...

It has been months since I last posted here and that's because there hasn't been anything to report. Until today.

On 4/29/2013 I had my normal follow-up MRI and it appeared to my amazing oncologist that everything was fine. A couple of weeks ago, however, my new epilepsy doctor noticed a small area in a different area of my brain that concerned him, an area my oncologist wouldn't normally look at. Another MRI was scheduled for today to check it out more closely.

(The original tumor area remains stable with no changes.)

Today's MRI shows that the area of concern has become slightly larger. It may or may not be anything serious but it could be a new area of cancer, or a few other things. On Monday, the Tumor Board (a group of experts from various fields) will discuss it and consider what should be done next, if anything.

If it were to be cancer I would have a number of possible treatments. We discussed one today which was cyberknife. I won't go into details at this point because it may not be cancer in the first place. The beauty of dealing with Swedish is that no matter what it is they have every option available to me.

If you know me, though, it goes without saying that my whole trust is in God and I trust Him to direct my course. I trust Him to help the Tumor Board come to the correct diagnosis and course of treatment. I trust that He may tell me to do nothing and trust Him for my healing. It's a day by day walk with Him and all He asks is that I continue to have childlike faith, listen, and do what He says. My Father in heaven knows exactly what it is and exactly what to do. He is faithful.

I covet your prayers for my family. This is not easy for them.

I'll post more as I know more.

God bless.  :)

Friday
Oct192012

Catching up...

A lot has happened since I last posted on our adventure. A few weeks ago I started having seizures; not the kind that throw you to the ground, but serious. The seizures weren't caused by the remaining tumor cells or scaring in my brain, but by a medication problem.

I wound up in the hospital for a week and since then we've seen a specialist at Swedish who's helping me find the right combination of drugs, etc. to help me.

My time in the hospital was difficult, but God and my family and friends were with me. Honestly, I don't remember many of their visits, but I know they were there. They all tell me we had cogent conversations but I don't remember most of them. (No matter what shape your loved ones are in, be with them when you can and be sensitive to their stamina.)

Yesterday I started getting a cold but today I feel much better. I'm going to lay low for a bit.

Thank you all again for praying for my family and me. It means everything.

Friday
Jun292012

What if?

When the Obamacare decision came down yesterday I began to wonder... what if? What if it were four years from now that I found out I have a cancerous brain tumor. Would my schedule of care look like this?

Actual schedule:

July 19th, 2010: Small seizure. Two hours later I have an MRI. I find out I have a brain tumor.

July 20th, 2010: Meeting with a neurosurgeon to discuss my options. He says it can't be removed.

July 23rd, 2010: Full body CT scan to look for any other signs of cancer.

Aug 3rd, 2010: First meeting with my neurosurgeon, Dr. Foltz in Seattle.

Aug 9th, 2010: Initial mapping MRI, first one for 45 minutes, second one for one hour and 45 minutes, in Seattle.

Aug 11th, 2010: Brain surgery

Aug 13th, 2010: Home from the hospital

Sep 13th, 2010: Begin radiation and chemo in Gig Harbor

This list doesn't include all the various doctor's appointments, blood draws, chemo and radiation appointments, all done in a smooth and timely manner.

And I haven't mentioned the seamless communication between all the doctors and my insurance provider. To date the bills are well over $600,000 without a hitch in payment.

I wonder what it will look like for those who receive their diagnosis in 2016 or later. Who knows... but now we have to wonder. Before we really didn't. Will someone like me receive this type of outstanding care? We'll all have to wait and see.

Thursday
Jun072012

MRI Scan results...

I had my three month MRI this morning, with follow up appt with my doctor. As always, my wife Sandy, and daughters Tammi and Dana, were with me. (Tracie is always here in spirit.) The MRI was great, no change!

Since there's been no change now for 14 months he's extending my appt's to four months apart.

All is well. Thanks be to God for all His blessings. :)

Wednesday
Mar072012

Latest scan is great...

Last Monday (3/5/2012) I had my three month follow up MRI to see how my brain is doing. Once again, after reviewing the images, my doctor was all smiles. All is well. If the cells they see are actually cancer cells they're not doing anything, which is exactly what they want.

For me, if they indeed are cancer cells I want them completely gone! And, of course, so does he.

My incredible wife, two of our daughters, and our grandson Sam went along to hear the news. It's so fun to see them smile as well.

I have another three month follow up MRI in three months (imagine that).

Doing great! Thank you again for all your prayers. :)

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